A Canadian Celiac Blog

It’s the beginning of August and my opportunity to speak with Ellen Bayens of theceliacscene.com to chat about the articles she has brought to our attention over the past month.

I was happy to let Ellen step up on her soapbox to talk about how unsafe gluten free food is when it’s prepared within a gluten bakery. This seems to be happening more often lately, even though we recognize that the food certainly doesn’t meet our normal standards for gluten free. Consumers are driving this trend, so it would seem it’s something we can change.

We also spoke about the value of Registered Dieticians who specialize in celiac disease. The name Selena DeVries came up as someone who understands our struggles first-hand and is there to help.

Ellen mentioned a few of my recent podcasts including 5 Tips for Cruising Gluten Free, my conversation with Miski Brewing about their quinoa-based beer, and on my other podcast, my co-host Aaron’s struggles with EOE – a condition that is more common in the celiac community.

NEWS FROM THE CELIAC SCENE

• Celiac & Gluten-Free Shoppers – Let’s Put a Stop to This! Controversial!
• Registered Dietitians are Key to Celiac Disease Management
• 5 Tips for Top Notch Cruising by Sue Jennett 
• Selena De Vries, The Celiac Dietitian Launches New Website
• Fast! Fun! Informative! News Round Up on ‘A Canadian Celiac Podcast’
• Miski Gluten-Free Brewing Launches Quinoa Beer
• Bouncing Back from Eosinophilic Esophagitis

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

This podcast episode is a solo effort. I had mentioned to Ellen Bayens earlier in the spring that I wanted to take some time to gather my thoughts on what stategies I employed while on a recent cruise that helped make my meals wonderful and safe. I’ve broken my thoughts down to five lessons and add a couple of stories on situations that happened. I ate very well on my transatlantic cruise on the Celebrity Edge in April. It takes a bit of effort and many conversations, but I was very looked after.

Here’s a few photos –

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

It’s the beginning of July, so for me that means another opportunity to speak with Ellen Bayens of theceliacscene.com to discuss articles and topics of interest Ellen has presented to us over the past month. It’s been a busy couple of months for both Ellen and I. She welcomed a new granddaughter and my daughter got married – we’re both still on a bit of a high!

Ellen and I spoke about the return of Only Oats to Canadian stores. The return will be gradual, but lots of work is being done to have the safe oats available across Canada. Ellen also told us about two brands of artificial crab that were improperly labelled omitting wheat and egg, so they appeared to be gluten free, but were not. We spoke about how gluten free consumers might approach this situation.

Ellen has had a long relationship with the restaurant chain Noodlebox, but recently it has become apparent that they are no longer able to ensure meals can be made gluten free. We discuss how this happened, and how you might may still want to work with your local Noodlebox location.

NEWS FROM THE CELIAC SCENE

• Podcast Time! The Return of Only Oats to the Marketplace
• CFIA Recall – Undeclared Gluten – Kanimi AND Miyako Shredded Artificial Crab
• End of an Era for Noodlebox Restaurants & The Celiac Scene

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode of the podcast, I’m speaking with an owner and founder of Miski Brewing from Barrie Ontario. Miski Brewing has an interesting story of how an unlikely gluten free ingredient came to be made into an organic gluten free beer. The Miski group of companies now also includes a pet treat brand born from a brewery product. There website is currently evolving, but you can find out more at https://miskibrewing.com/ and follow Miski Brewing on social media @miskibrewing.  Miski Brewing will be participating in events in Hamilton and Toronto during July.

Hamilton’s Because Beer Craft Beer Festival July 14-15

Because Beer

No Description

Toronto’s Festival of Beer July 28-30

Toronto’s Festival of Beer

Beer. Bands. Food. The legendary Toronto’s Festival of Beer is back for 2023. Local craft beer alongside international brews, it’s the event of the summer.

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with the new owners of Only Oats who are committed to getting the products back on store shelves across Canada. Many of us were concerned when our trusted oat brand was no longer available in our area and unfortunately, we had to wait to get the answered we needed. Only Oats is now back in the marketplace and today we hear about what happened, and how the new owners of the brand are working to come back and be there for consumers. I also speak with a registered dietitian who works with Only Oats about oats and how they fit into a gluten free diet, along with tips for adding this very nutritious food into our gluten free recipes.

Here’s the recipe Cara gave me –

Oatmeal Flax Banana Bread

Recipe developed by: Cara Stoller, B. HEc. R.D.

Our household goes through a few of these loaves each week!

Preheat oven to 325 F.

Spray and line a standard loaf pan with parchment paper to be able to lift out easily.

3 ripe bananas

1⁄2 cup egg whites

1⁄2 cup plain Greek yogurt

2 tablespoons canola oil

1 tablespoon vanilla extract

3⁄4 cup ground rolled oats

3⁄4 cup ground flax meal

1 teaspoon baking soda

1 teaspoon baking powder

Chocolate chips or walnuts if desired.

Combine wet ingredients in food processor. Add in dry ingredients and combine. Add chocolate chips

or walnuts if using and mix by hand. Pour into prepared loaf pan and bake for approximately 1 hour

at 325 F. Check with toothpick after 50 minutes.

Allow to sit in pan approximately 5 minutes once removed from oven. Lift out onto cooling rack and

gently roll out of parchment paper. Allow to cool prior to cutting.

Here’s some links mentioned in this episode –

Sue’s Gluten Free Granola Recipe – https://www.suesglutenfreebaking.com/oatmeal

Only Oats Website – https://myonlyoats.com/

email – info@myonlyoats.com

Facebook – https://www.facebook.com/onlyoatsglutenfreeoats

Instagram – https://www.instagram.com/only.oats/

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

It’s the beginning of June, so for me that means another opportunity to speak with Ellen Bayens of theceliacscene.com to discuss articles, studies and topics of interest Ellen has presented to us over the past month. This month Ellen gave us a study that looks at the pattern of healthcare visits of someone not yet diagnosed with celiac disease. This is considered to be the “diagnostic window” and past studies have been able to help with speedier diagnosis once a broad pattern has been established. This is already being done for some cancers and is currently being studied as an approach to celiac disease, parkinsons and other digestive conditions. If physicians were able to identify the need for celiac testing earlier, we could all benefit. This promoted a discussion of the uses for artificial intelligence as a tool for doctors.

Ellen published an article titled “My Mother’s Long & Winding Road to Diagnosis”. This is a complicated story with many twists and turns, and it wasn’t until I reached the end of the article that I realized this was actually written by Ellen about her Mother. She showed such courage and grace during very difficult times. Ellen and I give a quick synopsis, but I encourage you to read the entire article. We then discussed how important it is to be positive about your diagnosis, which can be difficult at first, but should be a goal.

Soft Serve Ice Cream and Gluten Free Waffle Cones – what more is there to say!

• Pattern of Health Care Visits Predictor of Future Celiac Disease Diagnosis?
• My Mother’s Long & Winding Road to Diagnosis

• Pure Lovin’ Chocolate – Oat Milk & Soy Soft Serve in GF Waffle Cones
• Softy’s Oat Milk & Coconut Milk Soft Serve in GF Waffle Cones

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with Justine Dowd PhD who, along with having celiac disease herself, is a Health and Wellness Specialist and Wellness Coach. Justine and I tackle the emotional topic of infertility as it relates to celiac disease. This topic includes issues around fertility for those diagnosed, along with the uncertainty for those yet to be diagnosed. Both Justine and I have suffered miscarriages, which are not uncommon, but are emotionally difficult for an entire family. Justine tells us about the gut-brain connection and goes through some of her strategies to assist couples preparing for an upcoming pregnancy. As well, Justine talks specifics about some of the therapy she used to help her conceive and maintain a pregnancy. She mentions a Dr. Sher and you can find out more information at his website – sherfertilitysolutions.com

Justine holds online educational events regularly, and you can find out more on her website – justinedowd.ca

You can follow her on Instagram at justinedowd.phd

You can follow her on Facebook at JustineDowdPhD

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

Happy May, Celiac Awareness Month!

At the beginning of each month, I speak with Ellen Bayens of theceliacscene.com to discuss articles, studies and topics of interest Ellen has presented to us over the past month. Of great concern to consumers in general, and gluten free consumers in particular, is the rising cost of food. In an effort to bring our unique perspective on these issues in front of lawmakers, Celiac Canada held a breakfast event on Parliament Hill recently. There are many aspects to the CCA message including the emphasis on the gluten free diet costing up to five times as much as gluten food, the unworkable tax relief that is not an effective solution as well as the lack of nutritional fortification in our gluten free processed foods.

Dr. Peter Green debunks six common myths of celiac disease. I found this particularly fascinating, as science will always win out these emotionally charged discussions. Ellen also brought us an article on new guidelines for physicians to diagnose and treat their celiac patients. Selena DeVries RD shares valuable information about over-the-counter allergy medications as well as her advice on digestive enzymes.

Ellen has done it again – she’s found new foods in her area. She not only found a cafeteria-style build your own pizza place, but also gluten free waffle cones.

Here are links to the articles we spoke about –

NEWS FROM THE CELIAC SCENE

• The Struggle is Real. The Rising Cost of Gluten-Free Food
• Experts Bust 6 Common Myths about Celiac Disease
• Updated Guidelines for the Ongoing Care of Celiacs
• M&M Angus Beef Burgers Subject to CFIA Recall – Gluten

SELENA’S CORNER

• Digestive Enzymes – Yay or Nay for Celiacs?
• Over-the-Counter Gluten-Free Allergy Medications – Adults & Children

GLUTEN-FREE PRODUCTS & SERVICES

• Introducing Pure Lovin’ Chocolate Vegan, Gluten-Free Waffle Cones
• MOD Pizza Scores a Double Header on Vancouver Island

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.comOther Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

On this episode I speak with Dr. Dan Leffler who is heading an international study to trial a medication for celiac disease. The medication is TAK-062 and the trial is called Illuminate-62. The trial is looking for individuals who are confirmed celiac, eating a gluten free diet, but still experiencing symptoms. At the time of our conversation the study has yet to launch in Canada, but when it does, Celiac Canada will have the information on their website www.celiac.ca.

You can find out more about the trial at –

ILLUMINATE Study – Home

Celiac is seriously exhausting restrictive time-consuming frustrating isolating . Celiac is seriously exhausting restrictive time-consuming frustrating isolating . Maybe one day it won’t have to be. See If You May Qualify Clinical research studies for those with celiac disease The ILLUMINATE Studies are looking to evaluate the safety and effectiveness of investigational medications for celiac …

Takeda launches the Illuminate-062 Study, a Phase 2 clinical trial of a medicine designed to help improve control of celiac disease | BeyondCeliac.org

Kate Avery, MPH, Director of Research & Patient Engagement Takeda Pharmaceuticals recently launched the Illuminate-062 Study , a Phase 2 clinical trial to study TAK-062, a gluten digesting enzyme, as a potential treatment for celiac disease . The trial is taking place in the United States, Canada and Europe, and is currently enrolling participants.

and for more technical information at – https://clinicaltrials.gov/ct2/show/NCT05353985

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

As part of my Back To Basics Series, I speak with Ellen Bayens of www.theceliacscene.com to find out some of her best strategies for dining gluten free safely. Ellen is well known as an expert in advising celiacs where and how they can eat safely as well as a resourceful advisor to restaurants to help them serve gluten free safely. Ellen walks us through the questions you should be asking and what some of the red flags might be, and when it’s best to not eat at a particular restaurant. We chat about different cuisines, the format of menus and even the different terms used on a gluten free menu.

Here’s the link to Ellen’s post for more information –

How to Order a Gluten-Free Meal

Communication is the key ingredient to every successful gluten-free restaurant meal. When diners, chefs and servers are able to collaborate on what is required and what can be reasonably delivered, there is cause for celebration! CLICK HERE TO DOWNLOAD PRINTER-FRIENDLY VERSION OF QUESTIONS TO ASK! But where to begin?

Sue’s Websites and Social Media –

Podcast https://acanadianceliacpodcast.libsyn.com

Podcast Blog – https://www.acanadianceliacblog.com

Email – acdnceliacpodcast@gmail.com

Celiac Kid Stuff – https://www.celiackidstuff.com

Baking Website – https://www.suesglutenfreebaking.com

Instagram – @suesgfbaking

YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL

Email – sue@suesglutenfreebaking.com

Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com