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Ep 255 February 2023 Roundup
Time to catch up with Ellen Bayens of theceliacscene.com. Ellen and I talk about a study that looks at celiac children with persistent symptoms after one year of being established on the gluten free diet. As well Ellen introduces a study in the form of online surveys to be taken by 8 – 16 year old celiac patients, in an effort to improve recommendations for celiac youth. Oats have been in the news lately and Ellen and I look at a study recognizing that some celiacs are not able to tolerate even pure oats. More investigation needs to be done on the cause of a reaction to pure oats, but this study hopefully is the first step to solving this issue. Ellen was able to bring us the story of a family suffering through the war in Ukraine with a sick child suspected of having celiac disease. The family is now in Boston, with the help of The National Celiac Association in Massachusetts. This prompted Ellen to mention a company she’s worked with called TOTAL PREPARE that makes freeze dried meals which can be used in case of an emergency, when camping, or when you’re struggling otherwise for basic necessities, as are parts of Ukraine currently. Ellen directs us to the company’s gluten free webpage – https://totalprepare.ca/shop/food/?swoof=1&pa_dietary-needs=gluten-free&really_curr_tax=770-product_cat&utm_source=cs&utm_medium=cs&utm_campaign=celiac_scene&utm_id=csgf
Ellen and I recapped my recent series of podcasts about asymptomatic celiacs, including my opinion on what I learned from the conversations.
Ellen was happy to tell us that the Noodlebox restaurant chain from BC has now opened a location in Ontario, west of Toronto. As well she was able to share some of the lengths that MeeT Vegan & Vegetarian restaurants go to in order to offer gluten free on their menu.
Selena DeVries, RD is offering her course “Gluten Free Eating Out Masterclass” free of charge. Sign up to receive the recording at –
https://event.webinarjam.com/go/replay/15/07304f5cyoa0za2
Why GI Symptoms Persist in Some Children with Celiac Disease
Family Flees Ukraine to Get Medical Care for Celiac Son
New ACG Guidelines Suggest that Oats Can Cause an Immune Response in Some Celiacs
University of Surrey (England) Recruiting 8-16 Year Old with Celiac Disease for StudyJill’s Asymptomatic Journey with Celiac Disease
Two Families Share Their Difficult Road to Diagnosis
Implications of Being an Asymptomatic CeliacA Warm Victoria Welcome to MeeT Vegan & Vegetarian Restaurant
Noodlebox Opens 30th Restaurant – Stoney Creek, OntarioSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 254 Sue’s Thoughts on the Asymptomatic Series
During the month of January, I’ve presented stories of individuals who consider themselves asymptomatic with Celiac Disease. I also made a commitment to share my thoughts at the end of this series. You can listen to all of these episodes on most podcast apps, on my blog www.acanadianceliacblog.com or on my podcast website acanadianceliacpodcast.libsyn.com.
Episode 249 Advocating for the Undiagnosed
Episode 251 Asymptomatic Mariya and Sacha
Episode 252 Asymptomatic Kids and Parents
Episode 253 Jill’s Asymptomatic Journey
Also, Episode 241 DH and Gluten Free in a Foreign Land
If you would like to share your comments with me, please email to acdnceliacpodcast@gmail.com.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 253 Jill’s Asymptomatic Journey
During the month of January, I’m presenting stories of individuals who consider themselves asymptomatic with Celiac Disease. On this episode I speak with Jill, who is one of those rare individuals who is biopsy confirmed with celiac disease but has no digestive issues when eating gluten. Listening to Jill I began to understand the difficulty she encounters when making food and lifestyle choices. Those of us with celiac disease know we must eat a gluten free diet, and if we don’t, or aren’t careful, we will suffer noticeable and often life disrupting discomfort. Jill, on the other hand has no digestive, or other issues if she eats gluten. Some may consider this a best-case scenario, if they slip up, or if they accidentally ingest gluten, they won’t even notice. However, this dream scenario comes with its own negative side. Jill struggles to commit to the diet on a long-term basis, even though she knows she should. Jill enjoys going to restaurants and, like the rest of us find requesting gluten free to be a hassle, but unlike the rest of us, she won’t suffer from being glutened, at least not in the short term.
I try to discuss the issues without making Jill feel guilty for slipping from gluten free, and we come up with some strategies going forward to make the diet something she can make a long-term commitment to.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 252 Asymptomatic Kids and Parents
Let’s start the blog with the show notes for this Episode –
During the month of January, I’m presenting stories of individuals who consider themselves asymptomatic with Celiac Disease. On this episode I speak with two Moms. The first family is struggling to arrive at a diagnosis for their child. I speak with the Mom both prior to and after the appointment with a specialist. The goal here is to formulate a plan to move forward while a diagnosis is being arrived at. The second Mom has unconventional symptoms, and also has a son who is, for the most part asymptomatic. I speak with both of them, to understand how they cope gluten free day to day.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 251 Asymptomatic Mariya and Sacha
Let’s start the blog with the show notes for this Episode –
During the month of January, I’m presenting stories of individuals who consider themselves asymptomatic with Celiac Disease. On this episode I speak with Mariya and Sacha. We chat about their stories, how they cope day to day and some of the unique issues around having celiac disease without the common severe digestive symptoms. My guests this month represent a broad range of symptoms, most not falling under digestive. I must admit to sometimes wishing I didn’t suffer the digestive effects of eating gluten, but as you’ll hear from my guests this month, being asymptomatic comes with other challenges.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 250 January 2023 Roundup
Let’s start the blog with the show notes for this Episode –
It feels like a bit of a milestone Episode 250, and it’s most fitting that I’m speaking with Ellen Bayens of www.theceliacscene.com about news and our views that have come up during the past month, getting us all ready to take on 2023.
Ellen and I chat about resistant starches and I learn that my love of leftovers is actually a good thing. We also look into the CCA Position Statement on Corn products and how it should help us in making safe food choices.
We also talk about some of my recent podcasts including a bonus episode on the Gluten Free Weigh In Podcast where each of my co-hosts gives their take on New Year’s Resolutions. Sidenote – Aaron has a very educated view on behaviour changes that goes way beyond a once-a-year decision. My podcasts for January will focus on people who consider themselves asymptomatic, or at least differently symptomatic. I’ll be travelling in January, so hopefully this series of podcasts will come out weekly, but at this point my schedule is somewhat unknown, but I will give it my best attempt.
Here is the list of topics from Ellen –
- Heads Up Celiacs: CCA Position Statement on Corn Products
- https://www.celiac.ca/wp-content/uploads/2022/12/Corn-Statement-Dec-5-2022-clean.pdf
- Coping Without a Diagnosis
- How to Check Out All-Inclusive Resorts
- What’s harder? Adopting the Gluten-Free Diet or Losing 100 pounds?
- Gluten-Free Crispy Chicken at Big Wheel Burger
- M&M options & how Rewards Card works
You may also want to check out these links we mentioned during the podcast –
Pilling Foods – https://www.pillingfoods.com/
El Faro Restaurant – https://theceliacscene.com/places/canada/british-columbia/parksville-1/featured-restaurant/el-faro-fusion/
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 249 Advocating for the Undiagnosed
Let’s start the blog with the show notes for this Episode –
I was fortunate to talk with many different people who consider themselves asymptomatic with celiac disease for a series of podcasts, uncoming in January. On this podcast, Peggy and her son are not asymptomatic, quite the opposite, their symptoms are severe, but they lack a diagnosis. I’ve run across many families in this situation and it’s difficult to give advice, because knowing what I know about diagnosing and living with celiac disease, I’m not sure what path I would take. Often these situations involve young children, who, for a variety of reasons have not had a proper diagnosis, but decisions must be made to keep they safe and healthy. What I’ve learned from speaking with so many about their diagnosis stories is that very few are straight forward and most have repercussions deep into the family dynamic. If you would like more information on many of the aspects of celiac disease that I speak to Peggy about, spend some time on the website of the Canadian Celiac Association www.celiac.ca. I encourage you to print off whatever resources might help you to speak to your doctor, family members, school or friends about what you need to be healthy.
Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 248 All-Inclusive Gluten Free Travel Explained
Let’s start the blog with the show notes for this Episode –
I always get excited when I can have my adult daughter, Deanna, on the podcast with me to discuss shared experiences and how she may do things a bit differently from me. This conversation is about booking all-inclusive travel, something that is a hot topic as the weather gets cold. Deanna and I have been on trips together, as well as separately and we both have thoughts and tips about researching, booking and going on an all-inclusive holiday. I was recently asked if an all-inclusive could be a safe choice for a vacation for someone eating gluten free. My answer is yes, but you have some extra work to do, that others won’t have.
Here is a link to the restaurant cards I spoke about. As well, there’s more information on this site that might answer questions for more adventurous travellers.
Deanna on Holiday Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 247 December 2022 Roundup
Let’s start the blog with the show notes for this Episode –
It’s the beginning of the month and I get to chat with Ellen Bayens of https://theceliacscene.com/ about the articles she has brought to our attention over the past month. We discuss a study of the issues involved in screening for other autoimmune disorders when patients have Celiac Disease, and screening for Celiac Disease in patients with other autoimmune conditions. We also discuss Refractory Celiac Disease which is CD that doesn’t resolve properly on a gluten free diet. The gluten free diet is difficult to learn and there is a new teaching technique to empower celiacs to use new tools to help them recover.
Ellen and I have a lively discussion about some recent podcasts I’ve done including Episode 246 which is a discussion with larger than life personality Mairlyn Smith about fibre in a gluten free diet, as well as a refreshing (and comical) look at how fibre helps the body.
Ellen has had a relationship with Stella’s Perogies which are now available in Eastern Canada at Sobeys and Walmart. Perogies are popular with many people during the holiday season. I also mentioned a great memory of making perogies at my bakery with members of our local celiac chapter a number of years ago. You can find the recipe on my website www.suesglutenfreebaking.com , under the recipe tab, show #14 https://www.suesglutenfreebaking.com/pasta-gnocchi-perogies
• Case for Screening for Autoimmune Disorders in Patients With Celiac Disease
• Managing Refractory (Non-Resolving) Celiac Disease
• Teaching Celiacs that they CAN Manage the Gluten-Free Diet is Key to their Recovery
• Asympotomatic Celiacs
• Freshly Milled Gluten-Free Flours from Millstone Organics
• Celiac Scene News Round Up• Losing Too Much, Too Fast Fast
• Obesity & Malnutrition Can Co-Exist
GLUTEN-FREE PRODUCTS & SERVICES
• Stella’s Gluten-Free Perogies Now at Sobey’s in Ontario & Atlantic CanadaSue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com
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Ep 246 Mairlyn Smith Talks Fibre and Gluten Free
Let’s start the blog with the show notes for this Episode –
This episode has been a long time in the works, since before I started the podcast. I have the pleasure on this episode to have a conversation with Mairlyn Smith, who is a Canadian personality, she is a comedian, an actress, and a Home Economist. As well Mairlyn is a recurring guest expert on Cityline and Breakfast Television. Her current book is called “Peace, Love & Fibre”. I met Mairlyn in the fall of 2017 and it was her encouragement that made me decide to start this podcast. Mairlyn is known in Canada as the Queen of Fibre and in her own amusing and witty way, she answers all my questions about fibre and the gluten free diet. I am fortunate that through the podcast I have met many inspiring individuals, and it all started with inspiration from Mairlyn. Thanks for that!
You can follow Mairlyn on Instagram and Twitter. You too can enjoy sharing a cup of tea with her most mornings on Instagram @mairlynsmith.
Mairlyn Smith with her book Peace, Love & Fibre Sue’s Websites and Social Media –
Podcast https://acanadianceliacpodcast.libsyn.com
Podcast Blog – https://www.acanadianceliacblog.com
Email – acdnceliacpodcast@gmail.com
Celiac Kid Stuff – https://www.celiackidstuff.com
Baking Website – https://www.suesglutenfreebaking.com
Instagram – @suesgfbaking
YouTube – https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL
Email – sue@suesglutenfreebaking.com
Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com